The $2,000 Bunk Beds – Part Three

After working through the emotional distress of taking apart the beds that I had made, it was time to do something easier, but a little scary, electrical work. After taking exhaustive measurements of all the rooms in the house, we knew that there was no way we could have bunk beds AND a ceiling fan in the same room. Call it what you will, but we saw a trip to the ER as a very real reality if this was left as the décor.

I grabbed a step stool, being tall has some perks, and took to disassembling the fan. This task, in and of itself was easy enough. But, it should be noted that I do NOT like playing with electrical work. Need a wall built or taken down, sure. Want the plumbing rerouted, on it. But electrical is the one thing that I have always been cautious of. I think that my dad put it best, and the fear of God into me about it when he told me; “Of all the things that you can do around the house, electrical is the one that will most surely kill you”.  I was eight.

Regardless, the fan came down easy. As I removed the housing my nightmare began. A spaghetti monster of white encased electrical wires uncoiled like a serpent from the junction box in the ceiling. I was expecting two wires to be there, not six. So, I caught my breath, saying a few words that I most likely should not have, and began sorting it out. I had already turned off the light switch that ran the fan. But, I felt an all too familiar bite of my dear nemesis, 110 volts. With the power off at the switch, there were still live wires!

I quickly had my beloved find and turn off the circuit to the kid’s room. Fun note, the breaker that runs the light and outlets in my kid’s room also runs one hall light, an outlet in the master, the light in the family room and the fan, but not the light portion of the fan, between the family room and the kitchen. Yeah, have fun with that. That allowed me to finish removing the fan, and install the new light. Anxious to get the beds together I stood in anticipation as my wife flipped the breaker for the room.

I squinted my eyes as I was blinded and my ear picked up the electrical hum.

There was light! I let out a sigh of relief as I walked over to the light switch (or should I say slider? Dimmer? sigh, whatever). It was in the off position. I did not think that this was important as I slid the switch to on. Boy was I wrong. There was a loud “POP”, the telltale make you cringe sound of working with electrical, from the light switch. The light stayed on, and there was a faint electrical odor in the air.

Trust me folks, it spirals from here. Come back tomorrow for the conclusion of this saga. Missed part one, or part two? Feel free to read them. Trust me, this ends in a flabbergasted mess.

Live big, love bigger, and be kind, always.

The $2,000 Bunk Beds – Part Two

I did it. I clicked purchase on the beds. It was at that very moment that I started to feel that this was not the right option. Chalking it up to buyer’s remorse, I did my best to shuffle it off. Instead I focused what I long knew what was going to be the hardest part, taking apart the beds that I had built my children.

Hovering around the mediocre level of carpentry, it is a passion more than it is a skill. However, I wanted to do something for my kids as they outgrew their toddler beds. I found plans, modified them to bring out aspects of each child, and I built them. They were not perfect, but they were perfect for them.  The joy and surprise on their faces when I put each one together filled my heart with joy.

But the day had arrived, and I stood there, in the silent room, looking down at the beds. Stripped down to the naked wood that I had built them from. I could hear the kids down the hall, playing with the heavy box that had arrived. I knelt down and began to take the beds apart. Making it even more difficult was that I put these together without the intent of having to take them apart. So, not only did I just have unscrew some screws and bolts, but I had to take a circular saw to my children’s beds to get them out the door. There must have been some extra sawdust in the air.

The beds were apart, and the project was underway.

As the time came to take the beds out of the house Zoey and David walked into their room. They saw that their beds had been taken apart. “Bed not there anymore” are the words that ripped through my soul. Kati did an amazing job and changed the mood. She turned taking the parts of the bed out of the house into a game. The laughter and screams of joyful competition filled the house.

But what would happen next would start the spiral of costs for this project.  Come back tomorrow for more. Missed part one? Read it here.

Live big, love bigger, and be kind, always.

The $2,000 Bunk Beds – Part One

No, this is not some post about how I have gobs of money to spend on my kids. Quite the opposite in fact. This is the story about how trying to be frugal cost us quite a bit more. This is also the first part of this story. It all stemmed from this previous post. To be fair, these bunk beds were only $200. But those bunk beds were only the beginning. Or at least close to the beginning.

To bunk bed, or not to bunk bed, that is the question.

Not that long ago we decided that we needed to create more space. With three kids ages five and under, an amazing border collie, and two adults our home was feeling like a belt at thanksgiving. This is to say suddenly and unexpectedly too small and confining.  For some time my beloved and I have been debating about bunk beds for our older two. We both grew up with them, and we know our kids far too well. Based on the, um, exuberance that Zoey and David both have we knew what this would mean. That their bedroom would devolve into some Orwellian nightmare, with a little Lord of the Flies thrown in for good measure.

Regardless, we decided that it was time to make the move. My beloved bride was in need of a craft space, and I needed some separation in my office. The Dungeons and Dragons party that I have been running was growing, and we were outpacing the space that I had set aside. So, we begun making the many changes that were needed. Boxing up things, moving them around, making space. The plan was to purchase the bunk beds, and then move Jacob into the room with the older two. This would free up the smallest room in the house, the nursery, for my wife to have as a craft room.

We also knew that in order to not have a dire situation on our hands that the ceiling fan in the kid’s room would need to be removed. There is not a single room in the house that is suitable for bunk beds where a ceiling fan would not be at hand, or head, height. Little did I know that the moment that I clicked “purchase” on those bunk beds our bank account would be forever changed.

Come back tomorrow for another installment of the $2,000 Bunk Beds. Also, there are more updates to come. It has been a crazy last month and a half. This story, is only part of it all.

Live big, love bigger, and be kind, always.

    Building a better home.

    Today is going to be an emotional day. I stood there looking into the room the ruckus of morning breakfast behind me down the hall, and sighed. 

    I built these beds for both of my kids with my own two hands. I found plans online and I modified them to help bring out some characteristics of each child. But today these beds come apart.
    The same hands that built the beds will now unscrew the screws. The wood will be removed from the room leaving a barren and empty. I’m almost certain that a war against the dust bunnies will be waged. In place of my two creations, a store-bought bunk bed will be put in. I have been dreading this day since the moment I clicked the purchase button for the bunk beds. I fretted over if I could just cancel the order and keep everything just the way that it is. But we are growing family in a very small house. We need space for things like a home office, crafts, and homeschooling of course.

    But having the ability to make things work, moving all three kids into one room, does not make this day any easier.

    There maybe someday down the road that my kids remember these beds. I want them to see that this decision to take apart something that I’ve gifted to them was not an easy one. but we often have to do things that are not easy. I’m sure they’ll be some pretty awesome memories about the time they will spend in a room together, all three of them. But for now I’m having a hard time letting go of the memories that we have created with just the two of them.

    Pictures we posted, hell I might even do a YouTube video just to help ease some of the pain that I’m feeling. Regardless, today is going to be an emotional day as I…

    Live big, love bigger, be kind, always.

    A quick update on all things

    Things, as always, have been nothing short of chaos for the first half of this month. There are times that my beloved and I just want to kick back, relax, and breathe a little.  But, no, that is not how things are.

    1. I think that we were a little taken aback by how much the daily vlogs for Cranio Acceptance Month were going to wipe us out. It took us over a week to just recover from the grind.
    2. We were able to take a small vacation to the beach with the family. It was a much needed break. Kati and I were on the tail end of exhaustion. But it was so good to be able to see the family.
    3. I am preparing to run a rather large group for Dungeons & Dragons. This is extremely exciting, but there is so much work that goes into running a game. I have worked hard to update and reconfigure my home office to accommodate for game night. Now, I have a little over a week, to test all of the systems and prepare for awesomeness.
    4. Kati has been doing an awesome job for her role as an Usborne consultant. She has learned a ton, in very short time. Every party that she hosts is exiting. It does often mean that our conversations late at night are dominated by ideas, but I think it is cute and I love it.
    5. Zoey has lost her hearing aids twice in the last three weeks. Want to know what can stop everything in a household. Have a $2500 medical device go missing. These are critical because Zoey has been doing such an amazing job with her speech therapy. From the moment that she has put her ‘super ears’ in she has rocked it.
    6. Jacob is nearly walking. By that, I mean he is at 6-7 steps in a row. It is amazing to see the look on his face when he is walking around. His smile is amazing.
    7. Both Zoey and David are killing it with homeschool this semester. David is doing an amazing job with addition and subtraction. Both are starting to read. Considering that neither would be in school yet (Virginia law states that if a child is going to start, the must start by the year that they are six), I am ecstatic at what they can do.
    8. Last but not least, we were surprised to find out that our daughter will have her yearly craniofacial clinic in early November, rather than December. For those that read my beloveds post about cranio, this is when things get real for us. We know that there are more surgeries coming, we are exactly where they said we would be when forecasting when we would be discussing the next one. My heart… well, my heart resides in my children, but I do not know if my body can take the stress that I am feeling right now. I am sure that we will talk about that more once we know more.
    9. Seven years ago (last week) my beloved and I went on our first date. Time flies, make sure you live in the little moments.

    That is all I have for you guys right now. Thanks for hanging in there on our crazy, chaotic, life. We are doing the best we can to…

    Live big, love bigger, and be kind, always.

      When Being Offended Isn’t Helpful

      I have seen a lot of controversy brewing over the past several months, over many things. Discrimination, racism, patriotism, freedom, protests, family values, management of donated funds, equal rights, media narratives, support in natural disasters…did I miss anything?? It seems that our culture has mastered the art of skimming a headline and deciding to be offended by something relating (or not relating at all) to an immediately perceived idea. Let’s think about this. A headline is not even one complete sentence, and it is well-crafted to catch our attention enough to desire more information. At least, that used to be the primary purpose. Most writers understand that the vast majority of people don’t bother to read entire articles anymore, so headlines have quickly become “click-bait”. The purpose is no longer to capture a reader, it is to capture a screen click. How many times have you opened an article online, only to leave the site in less than 15 seconds? You aren’t alone if you have.

      For those of you still reading, here’s my first point. We too often accept under-educated, over-paid opinions as “current events”. How many American opinions do you think have been created based on less than 15 seconds of actual information about an idea? Further, there used to be the idea of credible sources. That doesn’t seem to matter as much either, considering people aren’t staying long enough to read a well-founded point. Within those 15 seconds of input, what are the chances that there is more than one perspective provided, more than one opinion taken into account, or any historical evidence to support why that one mentioned opinion is well-founded? Anyone can say anything, which is a wonderful product of free-speech. Unfortunately, not everyone’s opinion is valid, well-founded, or worth even those 15 seconds spent skimming over it. Nothing I have mentioned to this point should be controversial because it is common knowledge, yet already I can guarantee that someone has decided to be offended by it. “What do mean I’m not properly informed within 15 seconds of a forwarded social media article?? The outrage!”  

      Secondly, we don’t seem to recognize that 15 seconds of immersion into one person’s written opinion does not suddenly transform us into constitutional lawyers, military strategists, surgical specialists, international organization directors, or any other position that requires years of education and experience. It simply makes us one more reader of an article. 

      Thirdly, one skimmed article is a great starting point if the topic stirs something inside you. If it leads you to seek out the most qualified opinions, a well-defined history, and the most current research on the topic, kudos to that initial writer! Ideally, it might even stir you to do something in real life that you may have never considered otherwise. But if all a headline does is cause you to be passively offended in a new way toward a new group of people, it’s greatest power is only to further divide us. 

      Lastly, we have the option to choose discernment. We have the choice to refrain from being exhaustively offended at every random story thrown our way. We have some amazing freedoms around here! That includes the freedom to weed out the trash from our feeds and news stations before responding to any of it. Sometimes being offended is just being offended. 

      Dear Craniosynostosis: A renewal of a letter

      Three years ago I wrote a letter to Craniosynostosis. I was so proud to have it published in The Mighty. It is about a conversation that I have with cranio from time to time. Reflecting on what I felt, and how I feel now.  Today, I update it a little.

      For Craniofacial Awareness Month, Kati and I have been posting vlogs answering questions about Craniosynostos. Every day on our YouTube channel, and even here on the sidebar. Yep, 30 questions that we have been asked, with answers that come from experience. Some of our conversation drummed up this letter. We decided that I would read this for one of the final vlogs this month. However, in order to do this, I wanted to bring it to the now. I did not want to leave it behind, collecting dust.

      So, without further ado. Below the break is the updated letter to Craniosynostosis.

      The Long Awaited Physician Survey

      Some time back we posted a physician rating survey in preparation for Craniosynostosis Awareness Month. Well, here we are at the end of the month, and I am just now getting to where I have something that I can post. We learned a great deal in this exercise. Most notably, how NOT to do a physician rating survey.

      We had over 100 submissions from all around the globe. With very few outliers we were happy to see many high ratings. It seems that there is a high regard for the physicians that are helping our little cranio kids. I had high hopes of taking this data, and creating something beautiful. Sadly, because of the way we asked the questions, this is not the case.

      Looking forward, we are already in the works for taking what we have learned, and making something better. We really feel strongly in empowering other cranio families. We know how important the doctors we chose are. It is a decision that is, quite literally, life changing.  However, we must provide something for those that have submitted. Not only as a way to say thanks, but to show the baseline of what we are doing.

      About the survey results.

      So, below, you will find a link that will allow you to download the scrubbed results. We have taken out the identifiable data, and have combined results into fewer entries. We are not sure if this will help, but it is something. I am certain that we will remove this link in the months to come. Assuredly by the end of this year. But, keep your eyes out for a new survey early next year. One that will be easier for those filling it out, and provide better data on the back end.

      Thank you, again, to those of you that filled this survey out. You are helping us create something awesome.

      Also, for those that took the Craniofacial Acceptance Month Quiz, thank you. Your results will be out early in October.

      Live big, love bigger, and be kind, always.

       

      Get the data here.

      Craniosynostosis: A Response From A Dad

      It is no small, strange thing, the feelings that come to the surface this month. We are forced to pause and reflect upon the path that our lives have been lead down over the last five years. All because of one long, scary, word that we did not know before our daughters birth. Craniosynostosis.

      We look back and see what we have all endured. Kati and I, as we became parents. As we watched our daughter defy the odds that she was given, and face greater challenges than many of her peers. With every vlog, conversation, tweet, blog, and post, we have relived some of the nightmares that we barely made it through. There have been more solemn nights over this past month, then during the entire year that has lead up to September.

      But, it is not all bad. Over the same time we have been able to look back at all of the accomplishments. We look out our window and see our sweet daughter climbing a tree, and hanging upside down. This child for which we were told may not walk. We listen to the laughter ringing through the house, and the stories that she tries to tell us. This child for which we were told may not talk. Granted, it is in a language that only we can understand, but we understand. We reflect on old movies and pictures showing each and every surgery she has been through. Breathing a sigh of relief we see how far she has come. This sigh is hesitant as we know not the road before us.

      Though the fires that have hardened us, the mountains that have climbed, we have been made strong. We have found that our greatest strength has lied within our darling daughter. Resilience, repose, defiance, independence, all these and more are her forte. From her we have drawn much into ourselves. We thrive on the tears and laughter, always the laughter. The pain and discomfort that we feel with this time of recollection outmatched and outpaced by the revelry and ballyhoo of where we are.

      Craniosynostosis, you are what WE make YOU.

      But, in the stillness of the night, there are still the hard moments. The ones that draw out of us the words that no one else is saying. That compel us to write them down, exposing our fears to the world. Posts like this one, by my beloved, that floors me. We scream into the wind out of frustration, begging for others to relinquish their positivity, for just one moment. To be real about this world that we live in. To become better beacons of hope, real hope, for those that are sailing the uncharted seas with us. Especially to those whom have found themselves in the eye of the hurricane that is this world, per manum Dei.

      We cannot live in fear of inadequacy. For all of us that are in this world of Craniosynostosis should have realized…

      Our children have taught us better.

      Live big, love bigger, and be kind, always