Our 5th September

It’s hard to believe we are already celebrating our 5th September as a family affected by a child with craniosynostosis. Celebrating because there are so many mini-milestones that became so important, new struggles that have been overcome, and constantly new obstacles that only God knows how we grow and move ahead through them. Zoey has brought an amazing, unique perspective to my world. She never stops trying, never gives up, and faces every struggle head on. In her mind there is never another option but to make life work so that she can participate to the max. She has inherited every ounce of stubbornness from both my husband and me, and has used it all in the best possible ways. She helps me to appreciate what I might have otherwise taken for granted, and encourages me to find new pathways when the common routes don’t seem to work for us. So yes, today we kick off our celebration of another September dedicated to the awareness and acceptance of craniosynostosis. Join us and maybe learn something new!

Leave a Reply